donderdag 17 juni 2010

Throwing away the curtain

You know how I’ve struggled with my special boy and him being different. When he was diagnosed as being autistic it felt like an incurable illness we just had to life with. I felt that the only option for me was to accept it and let go off my dreams. And although I tried to see things in a greater perspective, my feelings couldn’t. I felt lost. Deprived of a future where my boy could thrive and blossom. Where people would recognize his beautiful soul. And I also questioned the diagnose. Is Pelle really autistic? Is he on the spectrum somewhere? Sure he is not behaving like most of the children his age. But as I tried to pinpoint al those signs that are supposed to be typical indicators, I felt them slipping away. I tried so hard to search for ‘evidence’, that I lost my view on Pelle as the boy he is. So his diagnose really stood in the way. In the way of accepting him with all my heart, in the way of being unbiased and really open to everything he brings.

So that’s what a stigma does, even to a mother. It’s like a curtain. I was very busy trying to determine what the curtain looked like. I lost Pelle behind it.

But I am a lucky woman. Because of this blog, Maria contacted me. And told me about the Son-Rise program. Ironically, I have read this book about and autistic boy and the way his family embraced him and worked out a way to heal him many years ago, when I was a student. I have a very vivid memory of it. But I never made the connection with Raun, the boy in the book, and Pelle. Maria had to make it for me. Their message? Enter your child's world, and when he's ready, go play and show him the way out. You can help your child. Through real acceptance. By following and than leading.
And that’s another irony. Because in my profession, that’s also the key, if you want people to learn. First stand beside them and then show them alternative behavior. And always start with their own motivation, not with yours.

So I’ve thrown away the curtain. Because that was not helpful at all. Nor for me. And now I can see my kid again. And feel this joy arising in playing with Pelle and helping him coming into our world. And I really feel he’s growing so much, lately. Little by little, he is starting to interact with other kids. Holding hands with a girl on the playfield. Wanting to share his interest with gran, his biggest fan. Concentrating more and fantasizing more.
Maybe his brain is different from most kids. I now think that could be an advantage.
I heart what another father of an autistic boy, Rupert Isaacson, said. He and his wife also made an amazing journey to seek aid for their boy, Rowan. He wrote (in a more nuanced way that my summarization) that doesn’t even want to Rupert to be cured, as long as he has the ability to connect with our world.
And that’s my wish for Pelle, too. Being able to be himself, and have the social skills to interact with others. Because there’s so much love out there, for him. And I want to show him the way. Thanks to all the great instructions on the website of Sonrise, I now feel I have the tools in hand.

1 opmerking:

  1. I am glad you have moved aside the curtain. Pelle is still the same boy you've always known, no matter what labels are put on him. Sometomes labels are useful and sometimes can move on with your plans and get excited about his future again...because it will be a very bright one!